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An evening with e-patient Dave Nov. 8October 18, 2010
The benefits of internet-enabled engagement in your own health care
Open to the public free of charge
Still believe in doctors as gods? Not a wise course these days. Patients’ engagement in their own medical care, and the care of their loved ones, is increasingly understood as essential to wise decision making, treatment choices and even cost control. Dave deBronkart got involved four years ago, when doctors discovered a tumor on his lung, the result of kidney cancer that had already spread.
DeBronkart will talk about the benefits of active patient engagement on Monday, November 8, 2010 from
6:00 – 8:30 pm at Regis College in the College Hall Foyer.
A cancer survivor, blogger, and co-chair of the Society for Participatory Medicine, which encourages patients to be actively engaged in their care, “e-Patient Dave” deBronkart has also become a policy advisor in Washington in the past year on health informatics. His first book, Laugh, Sing, and Eat Like a Pig: How an Empowered Patient Beat Stage IV Cancer (and what healthcare can learn from it) tells the story of his own case as an internet-enabled patient.
In 2009 deBronkart gained EMR (electronic medical record) notoriety when a transfer of his personal health data went wrong. A data geek in his day job at the time and winner of a national award for marketing excellence, he wrote a 3500 word blog post about the data quality issues he discovered. This landed him on the front page of the Boston Globe. Within a month he was in Washington participating in policy discussions, and this year he advised on creation of regulations to help patients and families be involved with their medical records. Now an international speaker who engages audiences with his powerful personal story, e-Patient Dave won rave reviews in his first Regis appearance last spring in a nursing informatics class.
“Advances in informational technology are rapidly being implemented in health care and changing the way both patients and health care professionals approach diagnosis, treatment and recovery,” said Kathleen Donaher, Associate Professor of Nursing at Regis, who teaches the new informatics to both undergraduate and graduate students in nursing and other health care related programs.
“Dave and his story,” she noted, “exemplify the kind of transformational leadership that changes raw data into meaningful information. It helps patients, physicians and nurses alike gather all the information available from often disparate sources and connect it to make the most informed and best possible medical judgments.”
Come meet e-patient Dave to learn how the internet is changing healthcare, and how electronic health information enables patients to take a more active role in their care. The event begins at 6:00 p.m. with a chance to meet and mingle with light refreshments. Presentation and discussion with the audience begins at 7:00 p.m.
This event is the first in the Current Topics in the Health Professions series sponsored by Regis’s School of Nursing, Sciences, and Health Professions.
Regis College is a Catholic co-educational community that prepares undergraduate, graduate and continuing education students for engagement and service in a changing world. In the School of Liberal Arts, Education and Social Sciences and the School of Nursing, Sciences and Health Professions, approximately 1,600 students are enrolled in 20 undergraduate majors; 10 interdisciplinary pathways toward professional success; and master’s degree programs in education, communication, health administration, health product regulation, nursing, public administration, and radiology, and a doctoral program in nursing practice. U.S. News and World Report ranks Regis in the top tier of universities with master’s programs in the North. The College is listed by the National Survey of Student Engagement (NSSE) among benchmarking colleges for the quality of educational experience. With a strategic graduate focus on health care, Regis College was recently named a Center of Excellence in Nursing Education by the National League of Nursing. The College also provides accredited pre-school and kindergarten programs and a Life Long Learning Program (LLARC) for retired seniors. Visit Regis on the Web at www.regiscollege.edu.
CONTACT: Marjorie Arons-Barron, firstname.lastname@example.org; 617-423-7770